NEI Center - Welcome

Your calls to the New Jersey Senators and your e-mails resulted in the unanimous passage of the New Jersey Senate Resolution on June 10, 2010! | Click here for the Press Release

The Resolution SR20 is now scheduled for a full vote on June 10, 2010 - A resolution encouraging the establishment of the NeuroEndocrineImmune (NEI) Center™ , the first research center in the state of New Jersey dedicated to understanding and treating chronic neuroendocrineimmune (NEI) illnesses is currently awaiting passage in the New Jersey State Senate.

Senate Resolution (SR) 20, sponsored by Senator Christopher "Kip" Bateman (R), Senate Deputy Conference Leader, and Senator Loretta Weinberg (D), Chair of the Senate Health Committee, cites studies that an estimated 20 million American adults and children suffer with NEIDs.

Senator Weinberg enthusiastically stated:

"It makes sense to locate the NEI Center™ in New Jersey. As the nation's medicine chest, New Jersey is home to research institutions and private businesses that can cooperate to find a cure for these debilitating diseases."

Senator Bateman enthusiastically concurred:

"I look forward to the passage of Senate Resolution 20, solidifying legislative support for the research center, and have high hopes that this will, in fact, be a great step forward toward finding answers for the sufferers of these debilitating diseases."

Next step: The Resolution SR20 is now scheduled for a full vote on June 10, 2010.

What you can do:

What we hope to achieve:

The NEI Center™ will address the issues of chronic illness with medical research, comprehensive patient care, patient social services, and physician and patient education in one state-of-the art facility. New Jersey is best suited for this because of the academic and healthcare initiatives, the concentration of pharmaceutical industry expertise, and a very large and well-informed patient population who can support and participate in the creation of this Center.

Get involved! Call your senator today! Make your voice heard! Tell friends and family! Spread the word!

Visit the web sites of the organizations supporting the NEI Center™

http://www.causes.com/pandoraneicenter

We are grateful to the New Jersey CFS Association, which is supporting this local effort in New Jersey and a special recognition to Judy Machasek from Bergen County, who wrote the original Call to Action leading to this final one.

One Voice, One Community, One Cause™

If you have not signed off on the NEI CENTER™ petition asking the Department of Health and Human Services to fund the NEI Center, WPI and other similar facilities, we urge you to do it now.

Go to http://apps.facebook.com/causes/petitions/409

Thank you for your support!

The NEI Center™ TEAM.

WRITE TODAY TO THE NEW JERSEY SENATORS CO-SPONSORING THE RESOLUTION SR-20 AND TO YOUR DISTRICT SENATOR TOO.

We ask you that you send an e-mail, make a phone call or write a letter to the senators cosponsoring the resolution: Senator Bateman and Senator Weinberg. If you live in the state of New Jersey we ask that you write a letter to your local senator asking him to join Senators Bateman and Weinberg. You can cut and paste the sample paragraph below. Please note that we use a sample quoting CFS-ME. Whether you have CFS-ME or not you can still use it as a statistical sample. The key is to make it simple for you and to the point.

Dear Senator _____
I urge you to support SR20 currently waiting passage in the New Jersey Senate, encouraging the establishment of the NeuroEndocrineImmune (NEI) Center™ , the first research center in the state of New Jersey dedicated to understanding and treating chronic neuroendocrineimmune (NEI) illnesses. I have (write here the name of the illness you have). It has been extremely difficult for my family and I to bear the ravaging side effects of enduring a neuroendocrineimmune illness such as (write the name of the illness here) and its associated disorders. The economic impact and loss of worker productivity in the United States due to CFS/ME alone, is estimated to be over $9 billion per year.(CDC) Overall, chronic illness represents 75% of all the health care costs in the U.S. Therefore I ask you to support the efforts of Senators Bateman and Weinberg and make this legislative effort a reality for thousands of New Jersey citizens, as we as millions of Americans stricken with neuroendocrineimmune disorders. Thank you for your support of SR20.

CLICK HERE TO FIND YOUR LEGISLATOR IN NEW JERSEY

CLICK HERE TO FIND YOUR NEW JERSEY STATE SENATOR BY DISTRICT.

ASSEMBLY RESOLUTION 202 SUPPORTING THE NEI CENTER™ PASSES UNANIMOUSLY
On June 23, 2009, a similar resolution unanimously passed the New Jersey State Assembly 78-0. "Having a research center...is essential to promoting research into the etiology of, and therapeutic interventions for neuroendocrineimmune disorders (NEIDs)," according to Assembly Resolution (AR) 202 which was sponsored by Assemblyman Upendra Chivukula (D), Deputy Speaker; Assemblyman Herb Conaway, Jr. (D), Chairman, Health Committee; Assemblywoman Connie Wagner(D), Vice-Chairman; and Assemblywoman Mary Pat Angelini (R), member of the Health Committee.

P.A.N.D.O.R.A. SUBMITS TESTIMONY TO U.S. SENATE COMMITTEE ON APPROPRIATONS

Marly Silverman, Founder of the NEI Center™ and of P.A.N.D.O.R.A., submitted on April 12, 2010 a written testimony to the Subcommittee on Labor, Health and Human Services, Education and Related Agencies Committee on Appropriations, United States Senate - FY 2011. Click here to read her testimony.

P.A.N.D.O.R.A. SUBMITS TESTIMONY TO U.S.HOUSE COMMITTEE ON APPROPRIATONS

Marly Silverman, Founder of the NEI Center™ and of P.A.N.D.O.R.A.,submitted on April 12, 2010, a written testimony to the U.S. House Subcommittee on Labor, Health and Human Services. Click here to read her testimony.

SUPPORT THE NEI CENTER™ PETITION ON FACEBOOK

Join in asking U.S. Secretary of Health to meet with P.A.N.D.O.R.A. & to provide funding for the NEI Center™.

| Click here to go to our Facebook Cause Page

SUPPORT THE NEI CENTER™PETITION ON TAKEPART.COM - AMEX MEMBERS PROJECT 2010 CAMPAIGN. | CLICK HERE

MAY 12 IS AWARENESS MONTH FOR NEUROENDOCRINEIMMUNE DISORDERS

CLICK HERE FOR THE PDF FILE OF THE BEAUTIFUL POSTER BELOW

We thank you for your interest and or your support of the NEI Center™.
We urge you to be part of the political movement and of our patient-driven initiatives. As patients, we are the main stakeholders of the NEI Center™. It is important for us to take ownership of our lives and of our plight and be empowered.